Improves the health of CSHCN and their families. It supports a coordinated system of care that helps children get the care they need to grow and stay healthy. The system focuses on six main goals:
SHS offers family centered, community-based coordinated care for children and youth with special health care needs. Learn more about the family advisory council and family support organizations.
Children and youth with special health care needs should receive a medical home (main place for health care) model of care that is patient-centered, coordinated, comprehensive, and ongoing.
Families should have access to health insurance and funding to pay for services they need. Below is a list of health and other financial coverage resources.
Children and youth should be screened early and continuously. Below is a list of resources that aid in screenings for children and youth.
Community-based services should be organized so families can use them easily. Below is a list of community-based services for children with special health care needs.
- North Dakota Health and Human Services
- Family Voices of North Dakota
- Pathfinders
- FirstLink
- Heartland Genetic Services
- Federation of Families
SHS coordinates an annual meeting with the Medical Advisory Council to seek programmatic input and guidance.
Children and youth with special health care needs should receive services necessary to make transitions to adult life, including adult health care services. Below are resources for adolescents and young adults, parents and providers that may aid in the health care transition from pediatric to adult health services.