Russell-Silver syndrome (RSS) is a rare genetic disorder characterized by a wide variety of symptoms and physical findings that can vary in range and severity from person to person. The characteristic findings are:

  • Growth delays before birth and after birth with growth deficiency often resulting in short stature in adulthood
  • Unusual, distinctive facial features
  • A pinky finger that is fixed or 'locked' in a bent position
  • Undergrowth of one side or structure of the body resulting in unequal (asymmetric) growth
  • Often normal intelligence but potentially increased risk of learning disabilities

In accordance with state law, Special Health Services pays for growth hormone treatment and medical food for individuals with Russell-Silver Syndrome.

Individuals through 18 years of age who are diagnosed with this condition and living in North Dakota can enroll in the program without regard to family income.