To order copies of the Newborn Screening Brochure fill out the online order form.
Newborn Screening Refusal Form
Newborn bloodspot screening can help to detect many conditions that could harm a child in the first few days of life. Families have the option to refuse the testing, but are encouraged to discuss this decision with their health care provider prior to refusal. If families would still like to refuse testing, the Newborn Screening Refusal Form must be completed and returned to the program within 6 days of the refusal.
Newborn Screening Refusal Form
Request for Return of Specimen
A family may request to have the specimen card returned to them following testing. To request to have the card returned, the Request for Access of Protected Health Information (PHI) form must be completed and returned to the program. A clear photocopy of the signer's state issued ID is also required to be submitted with the request.
The North Dakota Health and Human Services, Special Health Services Unit, does not assume responsibility for the content obtained from external hyperlinks accessed from this website. Any links to external sources are outside of our domain. Information on external websites does not necessarily reflect the views and opinions of the ND Health and Human Services agency or the Special Health Services Unit.
American Academy of Pediatrics
Congenital Adrenal Hyperplasia Education and Support Network
Fatty Acid Oxidation Disorders
Genetic and Rare Conditions Site
National Center for Medical Home Initiatives
National Center on Birth Defects and Developmental Disabilities
National Coalition for PKU and Allied Disorders
National Newborn Screening & Genetics Resource Center
Newborn Screening Education Modules
North Dakota Children's Special Health Services
Save Babies Through Screening Foundation
Newborn Screening Can Identify Genetic Disorders (4 minute)
Why is Newborn Screening Needed? (30 second)
North Dakota Newborn Screening Program (15 second)
Newborn Screening Saves Lives (15 second)
North Dakota Newborn Screening Program (30 second)
Prenatal Genetics Video (9 minute)
Difficult Conversation Presentation (1 hour)
North Dakota Century Code for Newborn Metabolic and Genetic Disease Screening Tests
North Dakota Century Code for Newborn Screening
Newborn Screening Agency Rules
The North Dakota Health and Human Services, Special Health Services Unit, does not assume responsibility for the content obtained from external hyperlinks accessed from this website. Any links to external sources are outside of our domain. Information on external websites does not necessarily reflect the views and opinions of the ND Health and Human Services agency or Special Health Services Unit.
North Dakota Century Code for Newborn Screening:
Chapter 25-17-06. Pulse oximetry screening for critical congenital heart defects - Exception.
Before discharge of a newborn child born in a hospital with a birthing center, the newborn child must receive a pulse oximetry screening for critical congenital heart defects. The screening requirement of this section does not apply if the parents or guardians of a newborn child object to the screening. The state department of health shall provide medical staff and facilities that provide birthing services with notice regarding this screening requirement. For purposes of this chapter, pulse oximetry screening is not a test under section 25-17-05 and a congenital heart defect detected by screening under this section is not a metabolic disease or genetic disease as those terms are used under this chapter.
Resources for Pulse Oximetry Screening for CCHD:
Pulse Oximetry Screening Protocol and Tips for Pulse Oximetry Screeners
Additional Helpful Websites for CCHD:
The Newborn Screening Advisory Committee represents the interests of North Dakotans and assists in developing programs that ensure the availability of and access to quality genetic health care services by all residents. The committee advises the North Dakota Health and Human Services agency regarding newborn screening and makes recommendations about the design and implementation of the newborn screening program. The committee evaluates the addition of new disorders that may be added to the newborn screening panel as approved by the State Health Council.
The committee consists of members from professional groups, pediatricians, family practice physicians, mid-level practitioners, laboratory staff, nurses, midwives, doulas, family members and individuals with an interest in promoting newborn screening services.
The Advisory Committee meets on a quarterly basis via teleconference and has one in-person meeting per year. If you are interested in being a member on this committee, please send an email to email@example.com.
Newborn Screening Conference - May 3, 2023
Radisson Hotel | Bismarck, ND
MORE INFORMATION COMING SOON!
The National Collegiate Athletic Association (NCAA) requires that all athletes at Division I and II schools be tested for sickle cell trait before competing or sign a written release declining the test. NCAA information can be found here. The North Dakota Newborn Screening Program (NDNSP) began screening for sickle cell disease and trait(s) in 2003. Athletes born in 2003 or after can request a copy of their newborn screening (NBS) results, which includes sickle cell screening, at no cost.
NBS results can be requested in the following ways:
- The athlete can contact their hospital of birth directly to request a copy of their Newborn Screening results from their medical record.
- The athlete requesting the result can submit a request through their primary care provider (or sports medicine provider) to the State NBS program and the results can be sent securely to the provider and then given to the athlete.
Lastly, the athlete can request their Newborn Screening results from the NDNSP by emailing firstname.lastname@example.org. They must also attach a completed release of information form to the email. The link can be found here.